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Sponsoring event against rare diseases

As part of its Social Responsibility policy, Pangeanic has sponsored a charity football match to fund the initiative by the second year in a row. Proceeds from the event go to organizations involved in medical research against rare and degenerative diseases, multiple sclerosis among them. Several organizations such as El Corte Inglés, the newspaper Superdeporte, the digital newspaper VLC News, the sportswear brand Joma, Pangeanic and sport associations like Curva Nord from Valencia C.F. etc., have selflessly helped and sponsored the event. Local artists, musicians and sports personalities attended the event that took place at Sala de Ámbito Cultural of El Corte Inglés Avenida de Francia (Valencia), from motorbike racing stars such as Héctor Faubel to singers and footballers from the city’s teams, Valencia CF and Levante UD. Sports personalities from the English Premiership like Juan Mata (Manchester United), Italian Serie A (Raúl Albiol) and Spain’s Primera División sent support messages. [caption id="attachment_1477" align="alignright" width="300"] Pangeanic sponsors event againtst rare desease Pangeanic sponsors event againtst rare desease[/caption] Some members of Pangeanic staff attended and supported both the event and the match that took place in Villamarxant, Valencia.   Just over 6,000€ from the sale of tickets and donations will entirely be used in the research against rare and degenerative diseases. There are countless diseases classified as “rare”, ie when less than 1 or 2% of the population is affected by them. Rare disease care can include special equipment, physical therapy, social services, medicines, respite for family members, diagnostics, research - and more. Caring for people living with a rare disease has many facets. Whislt some patients or patients in some countries have access to medicines, others do not have any treatment available. Some patients suffering a rare desease may be fairly independent. Others, however, may require intensive physical assistance and equipment. Care needed can consist of special equipment, expert medical consultation, physical therapy, social services, medicines, respite for family members, and much more. The often neglected and forgotten issue about sufferers of rare deseases is that for most children and adults living with a rare disease, primary care is more often than not provided by family members.